Boston bound!

05.07.2012

Jesse (superstar boyfriend) and I are at the airport waiting to board our flight to Boston. I’m feeling a mix of anxious and “let’s just get on with this”!

I had a second broncoscopy last week which, on prelim biopsy check, came back with necrotic tissue (dead cells), no tumor cells, no crypto. They will be doing more specific tests this time including growing a culture to try to rule out crypto once and for all. I know this crypto mystery puzzled a lot of you – me too! And apparently all the docs as well. Apparently it’s not one of those black and white things. Because they think a cell may resemble crypto it throws us into this guessing game. And into $500/month of anti-fungal pills that thy want me to take for 6-13 months!!! All because of a very slight possibility of maybe having seen a cell. Yeah, I know, it’s crazy! I’ve pretty much decided that if the culture is negative and the post-op pathology is negative I will seriously give thought to continuing past a month or two!

I also had a PET scan last week which showed no further progression of the walnut or the lymph nodes but more mucin in the pleural space. I have had a bit of pinchy pain near my diaphragm which may explain this. So our decision to move ahead with surgery feels like the right move for sure.

Alison (superstar BFF) will be joining us  in Boston on Tuesday evening. We have a few appointments and pre-op tests in the days to come and then I am admitted on Wednesday evening. My surgery is scheduled for Thursday at 7:30am (EST).

I’ll aim to post one more time before Thursday. Alison and Jesse will take over the ropes and keep you all updated from outside the OR.

If you can , please plan to hold space, pray, meditate, walk or whatever works for you on Thursday morning for me! Ask that my team of surgeons make the right decisions for my best outcome and higher purpose.

I love you all more that I can express.

With gratitude,

Sam xo